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We are the only website in the world that connects parents whose children have the same rare disease. We understand how important itÂ is to have access to medical information and to get in touch with other parents dealing with your same issues.
Watch the video of Marcy speaking in Washington at the 2011 Childhood Cancer Summit, Washington D.C.
Empower yourself with knowledge about your child's rare disease. Together with a team of medical specialists, we have created a library of rare pediatric disease write-ups. We compile and post current medical facts, information, support groups, and web links to explore.