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Madisons Foundation - Moms And Dads In Search Of Needed Support

m-Power® Rare Pediatric Disease Database
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Acute Disseminated Encephalomyelitis (ADEM)

Acute disseminated encephalomyelitis (ADEM) is a disorder affecting the white matter of the brain and spinal cord, usually occurring after an infection or immunization. ADEM previously occurred most commonly following such infections as measles, smallpox, and chickenpox. However, the institution of widespread immunizations in developed countries has significantly reduced the incidence of such ch...

Acute Intermittent Porphyria

Acute intermittent porphyria (AIP) is an inherited disorder in which the body cannot produce normal amounts of heme. Heme is an important component of hemoglobin, which is the molecule in the blood that carries oxygen throughout the body. AIP is the most common of several types of porphyrias. ...

Acute Lymphoblastic Leukemia (ALL)

Acute Lymphocytic Leukemia, Acute Childhood Leukemia
Acute lymphoblastic leukemia (ALL) is a disease of the white blood cells known as lymphocytes. Lymphocytes normally help the body fight infection and are found in the blood, bone marrow, and other organs that are a part of the immune system. In ALL, functional lymphocytes are replaced by abnormal leukemic cells that grow quickly and accumulate in the bone marrow. As the number of healthy white blo...

Adult-Type Fibrosarcoma (ATFS)

Fibrosarcoma
Fibrosarcoma is a tumor of fibroblasts, the cells that create fibrous tissues. In newborns and infants up to about three years old, it is called Infantile Fibrosarcoma or Congenital Infantile Fibrosarcoma (CFS). Fibrosarcoma affecting older children, adolescents and adults is sometimes called Adult-Type Fibrosarcoma (ATFS). Fibrosarcoma tumors often arise in the arms or legs, but may arise in ...

Agammaglobulinemia, X-linked (XLA)

Bruton's Agammaglobulinemia
X-linked agammaglobulinemia (XLA) is a disease of the immune system that presents in early childhood. There are many cells that work as part of the body’s immune system to help fight infection. One type of cell is the B lymphocyte which plays a part in producing a protein called immunoglobulins or antibodies. There are five major classes of immunoglobulins, and IgG (also called gamma globulin) is ...
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Full disease list by letter:
3 | A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | R | S | T | U | V | W | X | Y | Z | All