Thursday, Aug 28, 2008 | 06:20 AM
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Madisons Foundation - Moms And Dads In Search Of Needed Support

m-Power® Rare Pediatric Disease Database
Full disease list by letter:
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Von Hippel-Lindau Disease

Some children can be born with Von Hippel-Lindau disease which is a rare disorder involving the eyes and the brain. Children with this disorder have tiny growths of blood vessels inside their eyes called hemangioblastomas. By the time children reach their 40s or 50s, they will also have developed these growths (or tumors) in their brain or spinal cords. Less commonly, children with this disorder m...

Von Willebrand Disease (vWD)

Pseudohemophilia, Vascular Hemophilia, Angiohemophilia
Von Willebrand disease (vWD) is the most common inherited bleeding disorder. It affects the ability of platelets (the cells which help in clotting) to stick to the vessels which are bleeding and form clots. vWD is inherited which means that changes in the genetic material that makes von Willebrand factor lead to the disease. Bleeding is prolonged after trauma or surgery, and symptoms such as nos...
Full disease list by letter:
3 | A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | R | S | T | U | V | W | X | Y | Z | All