e-Medicine
A website with an extensive database of up-to-date, comprehensive articles on various diseases. |
Medlineplus
A great website with over 600 articles on diseases and wellness. |
Any Baby Can
Every child deserves the best. Serving special needs children, at-risk children and their families. |
SMA Support Inc.
An all-volunteer, non-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects of spinal muscular atrophy. |
Family Village
A well organized website that provides information about many rare diseases as well as about support groups, genetic testing and other available resources.
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National Organization for Rare Diseases
An outstanding website with an extensive database of information on rare diseases. Some information is free, but some requires payment. |
Office of Rare Diseases
A great website with informational articles on many rare diseases as well as links to clinical trials, ongoing research and support groups. |
Clinical Trials.gov
This website provides regularly updated information about federally and privately supported clinical research. It also gives you information about a trial's purpose, who may participate, locations, and phone numbers where you can receive more details |
Clinical Trials.com
A well organized source for comprehensive information on current clinical trials being conducted nationwide. |
Double "H" Ranch
A Hole in the Wall Camp. A ranch in Lake Luzerne, New York, providing year-round fun and support for children 6-16 facing critical illness. |
