Thursday, Sep 02, 2010 | 12:25 PM
MF_Images_2.jpg

Madisons Foundation - Moms And Dads In Search Of Needed Support

Parents & Families
When your day-to-day life is anything but "typical," as so many parents of children with rare diseases can attest to, the little things are what help the most. In this section, tools are provided to assist parents and families in managing their child's medical journey.
Appointment Log
Print
E-mail
A form designed to keep track of your child's various doctor's appointments.

Download a copy of the Appointment Log  pdf

 
Journal Form
Print
E-mail

A sample printable form designed to organize and categorize information regarding your child's medical condition.

Download a copy of the Journal Form pdf

 
Effective Communication: Getting the Best Health Care for Your Child
Print
E-mail

Felice E. Miller, Ph.D. is a Clinical/Consulting Psychologist in private practice and faculty of UCLA Schools of Medicine and Pepperdine University. As expert in the field of interpersonal and intercultural communication, Dr. Felice has shared with us some effective communication tips to gain control when navigating in the health care system.

+ Read More
 
A Guide to Pediatric Procedures and Hospitalization
Print
E-mail
Madison's mom, Marcy, and Madison's anesthesiologist, Sam, have put together some basic tips on helping you and your child navigate the medical system. Hopefully these tips from two people who have been there will help you guide your child through common procedures with the least amount of discomfort and fear.
+ Read More
 

CONNECT
to other parents with your child's disease

m-POWER
explore the rare pediatric disease database

DONATE
to help support Madisons Foundation