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Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.
Our core value is that information IS support. We believe helping parents make informed decisions can alleviate some of the frustration they inevitably experience when fighting for their children's lives.
Madisons Foundation's most influential accomplishments lie in the areas of research and program development. We donate yearly to hospitals across the country to support research into rare pediatric diseases. We also facilitated a $200,000 donation to Emerging Therapies Initiative in Pediatric Oncology at the Jonsson Comprehensive Cancer Center, which provides clinical trials for children.
Our Connecting Parents program creates a personal network of support by connecting parents whose children have the same rare disease. As of January 2007, over 1,000 parents have joined the Connecting Parents database.
Our website is a free, online community with information for parents about rare, life-threatening diseases in children, and connections to other parents fighting the same diseases. The m-Power Rare Disease Database, updated by UCLA medical professionals, contains 522 entries and grows daily.