- Who We Are
- What We Do
- How To Help
- Madison's Books
- Contact Us
Association for Glycogen Storage Disease
A great organization for families affected with glycogen storage disorders including information about GSD II, a parent handbook, links, and an electronic mailing list to connect families together.
The Pompe’s Disease Page
A “guide for families” that explains the basics of enzymes, DNA mutations, and lysosomes, and how to care for a child with GSD II.
Information about GSD II and how to register into a database for patients to help increase the knowledge and research about this disorder.