- Who We Are
- What We Do
- How To Help
- Madison's Books
- Contact Us
Each type of SMA presents with different symptoms and are presented separately:
Muscle Dystrophy Association Well written information about SMA with nice pictures. The site also has links to ongoing research.
Families of Spinal Muscular Atrophy
This is a website that has wonderful resources for families that have been affected by this disease. There is news about clinical trials, research and personal stories about patients and families with SMA. It also has information on local chapters, legislative action, annual conferences, message boards, and a kids’ corner.
This is a wonderful website dedicated to finding the cure for SMA. With a football legend as their honorary chairman SMA gets a big boost on Capitol Hill. The site also gives current research findings and information about local chapters.
Spinal Muscular Atrophy Foundation
This website is also dedicated to finding a cure and promoting ongoing research on SMA. There is also information on the disease, research updates, and emphasis on raising public awareness about SMA.