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Trisomy 13 is present from birth. Children with trisomy 13 have certain physical characteristics but may not have all of the following symptoms:
SOFT: Support Organization For Trisomy 18, 13 and Related Disorders
A great website with information about Trisomy 13 as well as available support for families affected by the disorder.
HAND: Helping After Neonatal Death
A volunteer support group which helps families who have experienced loss of a baby before, during, or after birth.
A well-written article on Trisomy 13 with nice definitions of medical terms.