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Cystinuria support group:
A good website for families who want more information, including newsletters, a listserv, and a self-help handbook that can be dowloaded.
A good website for resources and information on Cystinuria, including a helpful link to a dictionary of medical terms, and a tutorial on how kidney stones are formed.
Cystinuria Bulletin Board
A great bulletin board for parents who want more information and support.
A nice website with information about the disease as well as links to other informational sites and support groups.
A comprehensive summary of the disease with nice definitions of technical terms.