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Neurofibromatosis 1 (NF 1) is usually diagnosed in young children and the diagnostic criteria requires that the child must have at least 2 of the following:
National Neurofibromatosis Foundation
This is a great resource that has lots of information on NF including ongoing research, support groups, clinical trials, and specific events going in your state.
Another good website with a lot of information about the current findings in NF research, newsletters, scholarship opportunities, and excellent links to various organizations. Additionally there is a good section on misconceptions of the disease (it is commonly confused with the disease that affected the Elephant Man).
Texas Neurofibromatosis Foundation
This has a wealth of information about the disease as well as links to other sites, NF clinics, patient outreach and annual events.