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A person with Kugelberg-Welander may experience the following symptoms:
Families of Spinal Muscular Atrophy
A comprehensive information and resource center, which provides contact information to local chapters throughout the country, clinical studies and trials that are currently being pursued, a kid’s corner with message board and “web links” for children.
E-medicine Instant Access to the Minds of Medicine
Search for “Kugelberg Welander Spinal Muscular Atrophy” A detailed resource of medical information for families seeking an in-depth description of their child’s syndrome. Includes description of illness, symptoms, diagnosis and treatment, and prognosis.
Yale New Haven Health Library
This website provides only a brief description of this syndrome, but has links to other resources and associations that may be important for families needing additional information.