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In general, the presentation is highly variable in children with Hermansky-Pudlak syndrome. They may exhibit the following:
Hermansky-Pudlak Syndrome Network
Useful and thorough general information about disease and resources
National organization for children with pigmentation disorders
International Albinism Center
For the parent interested in learning more about albinism.
Platelet Disorder Support Association
Great website for parents to learn about platelet disorders.
Good pictures of albinism.