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The Desmoid tumor Online Support Group
You must subscribe to this group to search their archives.
A very comprehesive summary of DT.
Children's Oncology Group
Information for parents on cancers and clinical trials of treatment.
Good general information about the disease.
Diamond Blackfan Anemia
This is a wonderful website that has a good review of DBA, tells of ongoing research, newsletter opportunities, and support from others that are also dealing with DBA.
This website allows for family members and patients to chat with others that have been affected by DBA.
National cancer Institute
A detailed summary of the disease with nice definitions of technical terms. National Heart,
Lung and Blood Institute
A website with information about ongoing research on DBA.
A website with information about clinical trials involving treatment of DBA.