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PFIC usually occurs soon after birth (within six months) and is a very rapidly progressing disease. Sometimes children may not develop the disease until later in childhood and even into adolescence. Children with PFIC may exihibit some or all of the following:
Children's Liver Association for Support Services
C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation.
Children s Liver Disease Foundation
Good website for information about disease treatments and research, support groups, and getting in touch with families of PFIC patients. Note however that this organization is based in the UK.
Canadian Liver Foundation
The Canadian Liver Foundation website provides research, education and patient support programs for all types of liver disease.