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The severity of symptoms depends upon the form of free sialic acid storage disorder. Children with free sialic acid storage diseases may present with any of the following:
Good international support group for a broad category of diseases.
National Tay-Sachs And Allied Diseases
Learn more about lysosomal storage diseases.
Nice, concise summary of relevant findings and genetic testing and counseling options.
Thorough website for a broad spectrum of related disorders.
International website geared to providing good general information.
New Zealand based website with good links to international support groups.