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Infants who have Hurler Syndrome will appear normal at birth, but will begin to show symptoms at approximately six months of age when glycosaminoglycans begin to build up in the lysosomes. Hurler Syndrome is a progressive and chronic disorder, meaning that symptoms will worsen as time passes. Some of the more common signs and symptoms include:
National MPS Society
This organization was founded by families of children with mucopolysaccharidoses and mucolipidoses. They provide information and support, such as regional meetings in which families can meet each other.
The Canadian Society for Mucopolysaccharide and Related Disorders, Inc
This organization provides information and support for families, while also increasing public awareness and raising funds for further research.
This website was created by a family with a child diagnosed with Hurler Syndrome. It has a journal about Molly s progress after bone marrow transplantation, and there are also several links to webpages made by other families affected by Hurler Syndrome.