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National Urea Cycle Disorders Foundation
A great site with detailed information about the disease, treatment options, support groups, and ongoing clinical research.
CLIMB (Children Living with Inherited Metabolic Diseases)
UK Organization dedicated to fighting metabolic diseases through research, awareness and support. This organization provides advice, information and support on all metabolic diseases to children, young adults, and families.
Contact a Family
Great website to contact other families with disabled children who suffer from rare diseases. This organization is a charity that helps families to cope with the burdens of caring for a child with a rare disease.
Save Babies Through Screening
A great website with information on OTCD and other urea cycle disorders, screening for the disorder as well as support for those affected. There are also links to other helpful websites.