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Pallister-Killian Syndrome Home page
This is a great website in which families can contact others affected with Pallister-Killian syndrome. There is also general information on Pallister-Killian syndrome as well as a list of links that may be useful.
Yahoo Support Group page
This website connects you to a support group for Pallister-Killian syndrome. Pallister-Killian Syndrome Family Support Group 3700 Wyndale Court Fort Worth, TX 76109 Phone: (817) 927-8854 Fax: (817) 927-2073
This website is a message board through which you contact other families with Pallister-Killian syndrome (the latest postings are from 2003 but the email contacts may still be in use) These websites have general information on PKS or have links that may be useful.
Chromosome Deletion Outreach, Inc.
800 #: 888-236-6880
National Institute on Deafness and other Communication Disorders
In a Q&A format, this website goes over many questions about hearing loss, and has a list of additional links that may be useful. The Arc (a national organization on mental retardation) http://www.thearc.org/ 800 #: 800-433-5255