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National PKU News
This is a great website that offers educational resources, information on formulas/foods for PKU, additional web-links, and support groups for families. Children's PKU Network Phone: 1-800-377-6677; 1-858-509-0767
This network provides an “express packet” of information for parents with child recently diagnosed with PKU. They also provide additional educational resources, financial aid for families, and have lists of formula/food suppliers. March of Dimes Birth Defects Foundation Phone: 1-888-MODIMES (1-888-663-4637)
This website offers a very informative and parent-friendly summary on PAH deficiency.
National Library of Medicine Genetics Home Reference
This website has summary of PKU facts plus many web-links to additional resources.
This website mainly has information genetic mutations and PKU, but under the “websites” link on the homepage, you can access a list of other web-links that have very helpful informational and support resources.
University of Washington
This website has a general summary on PKU plus more specific information on the PKU diet.
The Arc (a national organization on mental retardation)
This organization has specific chapters in different locations and the website has many links that may have helpful resources for individuals with mental retardation or learning disabilities.