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People with Robinow Syndrome will have several of the following symptoms.
Robinow Syndrome Foundation:
A great site created by families of children with Robinow Syndrome.
Children’s Craniofacial Association : This organization provides information and support to individuals and families affected with craniofacial abnormalities.
Little People of America:
Provides education and peer support for people of short stature.
A foundation that provides information about diseases and syndromes that affect children’s growth.