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National MPS (Mucopolysaccharidoses/Mucolipidoses) Society, Inc
A great site with detailed information about the disease, treatment options, support groups, and ongoing clinical research. Website also provides a comprehensive list of world wide resources for information on Scheie Syndrome.
The Canadian Society for MPS and related diseases
Organization whose purpose is to provide information and support to individuals and their families afflicted with a Mucopolysaccharide (MPS) disease, increase public awareness of MPS diseases, and raise funds to further research into MPS and related diseases.
Lysosomal Storage Disease Network
Great website the provides information, resources, and services to physicians and patients alike in their efforts to cope with Scheie Syndrome.
CLIMB (Children Living with Inherited Metabolic Diseases)
UK Organization dedicated to fighting metabolic diseases through research, awareness and support. This organization provides advice, information and support on all metabolic diseases to children, young adults, and families.