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The retinal degeneration with pigment changes and progressive paralysis of the muscles that control eye movement are classic findings of Kearns-Sayre syndrome. Other common findings are:
Foundation Fighting Blindness:
This foundation provides funding for research in diseases that cause blindness.
Mitochondrial Disease Support Group Online:
A support group for the online community. Also has links to other organizations and educational materials.
The Mitochondria Research Society:
This organization is mostly for scientists and physicians, but it provides information about promising research projects. Patients and families can sign up for a free newsletter.
Muscular Dystrophy Association
This organization provides information about neuromuscular disorders and services for individuals and families affected with such a disorder.
United Mitochondrial Disease Foundation
This website has a wide variety of educational materials and several personal stories. The foundation also provides support for individuals and families affected by mitochondrial diseases.