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Individuals with Leopard syndrome may have few or many of the signs and symptoms listed below. In the 1960s, some researchers named this syndrome ‘leopard,’ as an acronym. The letters stand for the signs and symptoms that are commonly associated with this syndrome. Since then, this name has been frequently used for this syndrome, although other names such as “Multiple Lentigines syndrome,” have been used as well.
Leopard syndrome support group
This is an online support group for Leopard syndrome through which you may be able to find other individuals affected with this syndrome and exchange resources.
This website has a short summary of Leopard syndrome.
Orpha Net (Rare diseases website)
This website also has a short summary of Leopard syndrome plus links that may be useful.
American Heart Association
Although this website doesn’t have specific information on Leopard syndrome, it has a lot of information on general heart problems, treatments, and helpful links. For instance, you can go to the “Diseases & conditions” links and look up cardiomyopathy or arrhythmias for more information on these conditions.
These are other websites with links on general information for heart problems, diagnostic tools, and treatments.
Human Growth Foundation
This website has a lot of information on growth hormones, such as diagnostic tests that are used.
MAGIC Foundation for Children's Growth
This group also has information on growth deficiency and may help you find other individuals with Leopard syndrome.