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Cardiac Arrhythmias Research and Education Foundation (CARE)
Education regarding this potentially fatal arrhythmia.
European Long QT Syndrome Information Center
Comprehensive information about this syndrome, as well as a message board.
Information about sensorineural hearing loss.
Cardio-Auditory Syndrome of Jervell and Lange-Nielsen
Compilation of definitions of JLNS from numerous sources.
Sudden arrhythmia death syndrome foundation (SADS)
Great link for parents and children to read about others affected, ongoing research, international symposiums and support groups.