- Who We Are
- What We Do
- How To Help
- Madison's Books
- Contact Us
In excellent resource for information about the diagnosis, family issues, treatment, and prognosis. This site also provides a member directory and online support group.
Facing the Challenges: A Guide to Cornelia de Lange Syndrome
A free on-line book about CdLS that is available from the CdLS-USA Foundation. The website requires Adobe Acrobat for viewing.
An international support group for the CdLS community.