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This is a great website that has links to current research, an online chat room, and a place where you can “ask the expert” about specific questions regarding your child’s condition or Myotonic Dystrophy in general.
Muscular Dystrophy Campaign Fact sheet on Myotonic Dystrophy This is a good website with educational information concerning this disorder.
Myotonic Dystrophy Support Group
This is a great website that offers lots of different types of support, a newsletter, and a tutorial to explain the genetic basis of the disorder.
A PDF Booklet from the University of Washington titled: Myotonic Dystrophy: Making an Informed Choice About Genetic Testing
Well written and thoughtful information about myotonic dystrophy and genetic testing.