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National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information and links to ongoing research and clinical trials on various musculoskeletal and skin diseases.
Genetic Alliance: Advocacy, Education & Empowerment
General resources, glossary, and tools for understanding genetic disease.
Nice general synopsis on the condition.
Pediatric Bone Disorders
Concise summary of the major pediatric bone disorders.
Little People of America
Very credible website and group devoted to improving the lives of little people.
Short Persons Support
Lots of useful links to consider.