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Association for Glycogen Storage Disease
Excellent website for basic information on glycogen storage diseases, as well as the option to join a mailing list to connect with others interested in the diseases.
Muscular Dystrophy Association
Voluntary health agency offering research news, an online library, a chatroom, and an “Ask the Experts” section on various muscular dystrophies.
CLIMB (Children Living with Inherited Metabolic Diseases)
Active organization offering support networks, grants, newsletters, children’s services, and a magazine for metabolic disease awareness and support.