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The WebMD page contains a very brief and basic explanation of MED. However, it does list additional resources for information and support.
This link is to the Cedars-Sinai International Skeletal Dysplasia Registry. People can sign up to be in studies or get more information on dysplasia. This site also has a variety of links to other organizations and groups.
Little People of America
This is the site for the Little People of America organization. It is a place where people with bone disorders resulting in small stature can find informational resources and social support.