- Who We Are
- What We Do
- How To Help
- Madison's Books
- Contact Us
Proteus Syndrome Foundation
Parent developed website in memory of her 9 year old son with Proteus syndrome which has medical articles, newsletter, conferences, family stories, and research arm to search for a cure. Phone: US Tel number 719-660-1346; email firstname.lastname@example.org)
Contact a Family (with disabled children)
Website from UK for families of children with any kind of disabling condition which features parent support groups, medical information, publications.
Proteus Family Network UK
A UK website focused specifically to Proteus Syndrome which has a newsletter, parent support, events, research and links to other sites.