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Rett Syndrome Research Foundation
This website, founded by 6 parents of children with Rett Syndrome, is very helpful to other parents. It talks about current research for this disease, as well as giving a quick link to what Rett is and how to diagnose it. It has updated news on the new findings as well as a newsletter and a mailing list you can join.
National Institute of Neurological Disorders and Stroke: Info about Rett Syndrome.
This website has another well written description of Rett Syndrome and how one can diagnose it, as well as the treatment options. It has a good link to other Rett Syndrome websites including ongoing clinical trials.
International Rett Syndrome Organization
A very good website on Rett Syndrome that discusses current research, what is new with the disease, its prognosis, treatment, etc. There is a great link for support and resources on this topic where parents can go for more info or help.