- Who We Are
- What We Do
- How To Help
- Madison's Books
- Contact Us
Autoimmune Lymphoproliferative Syndrome (ALPS)
National Institutes of Health - Nov. 1999
An excellent site with general, easy to read information about the disease, about the underlying genetics and with links to other resources.
"The Official Patient's Sourcebook" on Autoimmune Lymphoproliferative Syndrome
From the website: This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to autoimmune lymphoproliferative syndrome. The website has some free information but the book is not free.
A great website with current research and ongoing clinical trials.